
From the U.S. Code Online via GPO Access
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[Laws in effect as of January 23, 2000]
[Document not affected by Public Laws enacted between
  January 23, 2000 and December 4, 2001]
[CITE: 42USC11201]

 
                 TITLE 42--THE PUBLIC HEALTH AND WELFARE
 
     CHAPTER 118--ALZHEIMER'S DISEASE AND RELATED DEMENTIAS RESEARCH
 
                    SUBCHAPTER I--GENERAL PROVISIONS
 
Sec. 11201. Findings

    The Congress finds that--
        (1) best estimates indicate that between 2,000,000 and 3,000,000 
    Americans presently have Alzheimer's disease or related dementias;
        (2) estimates of the number of individuals afflicted with 
    Alzheimer's disease and related dementias are unreliable because 
    current diagnostic procedures lack accuracy and sensitivity and 
    because there is a need for epidemiological data on incidence and 
    prevalence of such disease and dementias;
        (3) studies estimate that between one-half and two-thirds of 
    patients in nursing homes meet the clinical and mental status 
    criteria for dementia;
        (4) the cost of caring for individuals with Alzheimer's disease 
    and related dementias is great, and conservative estimates range 
    between $38,000,000,000 and $42,000,000,000 per year solely for 
    direct costs;
        (5) progress in the neurosciences and behavioral sciences has 
    demonstrated the interdependence and mutual reinforcement of basic 
    science, clinical research, and services research for Alzheimer's 
    disease and related dementias;
        (6) programs initiated as part of the Decade of the Brain are 
    likely to provide significant progress in understanding the 
    fundamental mechanisms underlying the causes of, and treatments for, 
    Alzheimer's disease and related dementias;
        (7) although substantial progress has been made in recent years 
    in identifying possible leads to the causes of Alzheimer's disease 
    and related dementias, and more progress can be expected in the near 
    future, there is little likelihood of a breakthrough in the 
    immediate future that would eliminate or substantially reduce--
            (A) the number of individuals with the disease and 
        dementias; or
            (B) the difficulties of caring for the individuals;

        (8) the responsibility for care of individuals with Alzheimer's 
    disease and related dementias falls primarily on their families, and 
    the care is financially and emotionally devastating;
        (9) attempts to reduce the emotional and financial burden of 
    caring for dementia patients is impeded by a lack of knowledge about 
    such patients, how to care for such patients, the costs associated 
    with such care, the effectiveness of various modes of care, the 
    quality and type of care necessary at various stages of the disease, 
    and other appropriate services that are needed to provide quality 
    care;
        (10) the results of the little research that has been undertaken 
    concerning dementia has been inadequate or the results have not been 
    widely disseminated;
        (11) more knowledge is needed concerning--
            (A) the epidemiology of, and the identification of risk 
        factors for, Alzheimer's disease and related dementias;
            (B) the development of methods for early diagnosis, 
        functional assessment, and psychological evaluation of 
        individuals with Alzheimer's disease for the purpose of 
        monitoring the course of the disease and developing strategies 
        for improving the quality of life for such individuals;
            (C) the understanding of the optimal range and cost-
        effectiveness of community and institutional services for 
        individuals with Alzheimer's disease and related dementias and 
        their families, particularly with respect to the design, 
        delivery, staffing, and mix of such services and the 
        coordination of such services with other services, and with 
        respect to the relationship of formal to informal support 
        services;
            (D) the understanding of optimal methods to combine formal 
        support services provided by health care professionals with 
        informal support services provided by family, friends, and 
        neighbors of individuals with Alzheimer's disease, and the 
        identification of ways family caregivers can be sustained 
        through interventions to reduce psychological and social 
        problems and physical problems induced by stress;
            (E) existing data that are relevant to Alzheimer's disease 
        and related dementias; and
            (F) the costs incurred in caring for individuals with 
        Alzheimer's disease and related dementias;

        (12) it is imperative to provide appropriate coordination of the 
    efforts of the Federal Government in the provision of services for 
    individuals with Alzheimer's disease and related dementias;
        (13) it is important to increase the understanding of 
    Alzheimer's disease and related dementias by the diverse range of 
    personnel involved in the care of individuals with such disease and 
    dementias; and
        (14) it is imperative that the Social Security Administration be 
    provided information pertaining to Alzheimer's disease and related 
    dementias, particularly for personnel in such Administration 
    involved in the establishment and updating of criteria for 
    determining whether an individual is under a disability for purposes 
    of titles II and XVI of the Social Security Act [42 U.S.C. 401 et 
    seq., 1381 et seq.].

(Pub. L. 99-660, title IX, Sec. 902, Nov. 14, 1986, 100 Stat. 3802; Pub. 
L. 102-507, Sec. 4, Oct. 24, 1992, 106 Stat. 3281.)

                       References in Text

    The Social Security Act, referred to in par. (14), is act Aug. 14, 
1935, ch. 531, 49 Stat. 620, as amended. Titles II and XVI of the Act 
are classified generally to subchapters II (Sec. 401 et seq.) and XVI 
(Sec. 1381 et seq.), respectively, of chapter 7 of this title. For 
complete classification of this Act to the Code, see section 1305 of 
this title and Tables.


                               Amendments

    1992--Pars. (4) to (14). Pub. L. 102-507 added pars. (4) to (8), 
redesignated former pars. (7) to (12) as (9) to (14), respectively, and 
struck out former pars. (4) to (6) which read as follows:
    ``(4) the care for individuals with Alzheimer's disease and related 
dementias falls primarily on their families, and such care is very often 
financially and emotionally devastating;
    ``(5) the cost of caring for individuals with Alzheimer's disease 
and related dementias is great, and conservative estimates range between 
$38,000,000,000 and $42,000,000,000 per year solely for direct costs;
    ``(6) although substantial progress has been made in recent years in 
identifying possible leads to the causes of Alzheimer's disease and 
related dementias and more progress can be expected in the near future, 
there is little likelihood of a breakthrough in the foreseeable future 
which would eliminate or substantially reduce the number of individuals 
with such disease and dementias or the difficulties of caring for such 
individuals;''.


                      Short Title of 1992 Amendment

    Section 1 of Pub. L. 102-507 provided that: ``This Act [enacting 
section 11261 of this title, amending this section and sections 285e-5, 
11211, 11212, 11221, 11223, 11251, 11253, 11263, 11292, and 11294 of 
this title, repealing section 11261 of this title, and amending 
provisions set out as a note under this section] may be cited as the 
`Alzheimer's Disease Research, Training, and Education Amendments of 
1992'.''


                               Short Title

    Section 901 of title IX of Pub. L. 99-660, as amended by Pub. L. 
102-507, Sec. 2(a), Oct. 24, 1992, 106 Stat. 3281, provided that: ``This 
title [enacting this chapter] may be cited as the `Alzheimer's Disease 
and Related Dementias Research Act of 1992'.''
